BIRD: Health Data Access

OneFlorida Data Trust

The OneFlorida Data Trust is a robust and secure repository of healthcare data, supporting clinical and translational research across Florida and beyond. Managed by the OneFlorida Clinical Research Consortium, the Data Trust serves as a vital resource for researchers within the FSU CTSA BIRD program and affiliated institutions.

Key Features of the OneFlorida Data Trust:

• Comprehensive Coverage: Housing data from over 21 million patients, the Data Trust integrates healthcare records from multiple sources, including hospitals, clinics, and health systems throughout Florida.
• Diverse Populations: The dataset captures the diversity of Florida’s population, providing researchers with an unparalleled opportunity to study health disparities, disease patterns, and population health trends.
• HIPAA-Compliant Infrastructure: Designed with stringent security and privacy protocols, the Data Trust ensures the confidentiality and integrity of patient information, enabling compliant data access for approved research projects.
• Real-World Data: Includes structured electronic health records (EHRs), claims data, and social determinants of health, fostering studies that address complex, real-world healthcare challenges.

Supporting the FSU CTSA Mission

As a key resource for the FSU CTSA BIRD initiative, the OneFlorida Data Trust empowers researchers to:

• Develop and validate predictive models for health outcomes.
• Examine trends in public health and healthcare delivery.
• Evaluate interventions and inform evidence-based practices.
• Engage in community-based research that addresses regional and state-level health priorities.

Collaboration Opportunities The FSU CTSA BIRD team actively collaborates with OneFlorida researchers and other stakeholders to leverage this extensive dataset for impactful research. Through this partnership, we aim to enhance healthcare quality, promote health equity, and contribute to groundbreaking discoveries.

For more information about accessing the OneFlorida data for your research, please submit a ticket to CTSA Consulting Suite CTSA Service Request Form. 

Related Link:

OneFlorida Clinical Research Consortium: https://onefloridaconsortium.org/

National COVID Cohort Collaborative using N3C Data Enclave

The N3C Data Enclave is a secure platform through which the harmonized clinical data provided by our contributing members is stored. The data itself can only be accessed through a secure cloud portal hosted by NCATS and cannot be downloaded or removed. N3C invites you to begin your journey with the Enclave and join the collaborative efforts of our partners to better understand and address the most pressing COVID-19 clinical questions.

Follow https://covid.cd2h.org/ and check out the support tab.  There are trainings and tutorials that are available.  There are also workstreams that you can join to learn more about how others are using the enclaves tools etc.  Solid community to help you and others engage with the data and tools. 

Here are some useful resources:

N3C Data Enclave Account Creation Instructions: https://covid.cd2h.org/account-instructions

N3C Brochure: https://covid.cd2h.org/n3c-brochure

N3C Tutorial: https://covid.cd2h.org/tutorials

Training Opportunities: https://covid.cd2h.org/training

NIH All of Us Research Program

The All of Us Research Program is a historic effort to collect and study data from one million or more people living in the United States. The goal of the program is better health for all of us. The program began national enrollment in 2018 and is expected to last at least 10 years. it collects health data from a million people across the U.S. to help build one of the most diverse health databases in history. Researchers will use the data to learn how our biology, lifestyle, and environment affect health. This could help them develop better treatments and ways to prevent different diseases.

All the researchers in FSU are now able to apply for Researcher Workbench access. Register as a researcher by creating an account at (https://workbench.researchallofus.org/login). You will receive an email with further instructions once you have completed your researcher profile.  In addition to creating a workbench account, all researchers must have an existing eRA Commons account before they can access the Workbench and registered tier data.

If you are a researcher who does not have an eRA Commons account, please work with FSU Sponsored Research Administration (https://www.research.fsu.edu/research-offices/sra/era/) to set one up. After this is established, you may proceed with your application to the Workbench. For more information about eRA Commons, please visit https://era.nih.gov/.

For more info about All of Us Research Program, please visit https://allofus.nih.gov/.

If you have any questions or concerns, please contact support@researchallofus.org.